Saturday, April 28, 2012
RACE FOR GRACE 5K and pancake breakfast. This will be held Saturday May 5th at Jensen Nature Park in Syracuse. Sign ups will be at 7am and the 5K will kick off at 8am SHARP!!! Striders will be hosting the 5K. A pancake breakfast will follow at the park at 9am. We will have live acoustic music playing during sign ups and breakfast. Anyone who signs up for the race will receive breakfast and a Race for Grace bracelet. The cost will be $25 a person. If you are only interested in eating (as I am), breakfast will be $5 for adults and $3 for kids!!! Start praying for beautiful weather and amazing positive energy just as we were blessed with before. And of course, the best part is Amazing Grace will be in attendance to cheer everyone one. We couldn't feel more blessed for her and her entire family to be able to share this morning all together!!! So mark your calendars and I hope to see you all there!!!
Gracie has been fighting an auto- immune disease of an unknown cause since Aug 25th, 20011. She was a patient at Primary Children's for 6 months. She has been home for over a month now. She has a long road ahead of her to recover but we have faith that it will happen. This is a fundraiser for she and her family for medical costs and lost wages. If any of you can attend that would be amazing. So many of you have been a HUGE support to Gracie and we hope this will continue throughout her recovery.
If anyone has any questions feel free to email me at email@example.com. Hope to see a lot of you there!!! All proceeds will go to Gracie Hinds and her family.
Friday, April 13, 2012
Thursday, April 12, 2012
Monday, March 5, 2012
There really is no place like home, and Gracie is proving that everyday. She is doing amazing. It was a very teary goodbye at the hospital on Tuesday. We were so overwhelmed with the love we received by so many people there, I can't even describe it. After calling it our home for the past six months it was really like leaving behind members of our family but Gracie was so ready and coming home was incredible. The first thing she said was "it's my home", and she has been thriving ever since. She is already walking, talking, and eating more each day. Today we took her to a movie and she did great. I can't even tell you what it's like having us all under one roof again. I feel like the luckiest person alive because I get to live with a walking miracle everyday. Allie couldn't be happier to have her sister home, she has been an incredible helper. Thanks so much for those who have provided meals, it has helped out so much. I will post many pics soon and keep you all updated. Love you all so much.
Sunday, February 26, 2012
It is finally happening!!! We are coming home! Gracie's discharge date is this coming Tuesday, Feb 28th. We have spent the last two weeks making changes to her meds so that we will have a med schedule more appropriate for home and although she will still be on close to 20 meds, she is ready to come home!! I can't even begin to describe what we are feeling right now. The last six months have been unreal in so many ways. We were told in Gracie's second week here, by several doctors, that this day would never come. We believed in her, and we knew in our hearts that her life... was not over. We knew in our hearts that the fight we were fighting to keep them looking for an answer was nothing compared to the fight she was fighting to come back to us. All we wanted was to bring her home again, to have our family under one roof, and to let her know how much we have all been forever changed because of what she has been through. Gracie still has many struggles ahead. Recovery will still be long and hard. We will need everyone's continued love and support. We will also need everyone to be sensitive of the changes Gracie has gone through. She is amazing and all we want is everyone to look at her and realize how far she has come in the last six months, she has literally come back to life. We have been instructed by her Dr's to keep the transition home calm and quiet, so we are asking for no visitors in our first few weeks home, and then we will slowly begin to reintroduce Gracie to her life. I'm sure you all can understand how overwhelming this will be for her and your love and support will continue to get us all through the months to come. I will continue to post updates and pictures!! We love you all so much!!
Thursday, February 16, 2012
Click on the link below to see Mindy Hinds (Gracie's Mommy), help tell Gracie's story to KSL morning news....
The stories behind the 36th annual KSL Radiothon | ksl.com
Please continue to pray for Gracie and her family. God hears us and as helped our AMAZING GRACE to get to where she is now. I know He will continue to give the Hinds family strength and comfort. This is just the beginning of Gracie's recovery.
Saturday, January 28, 2012
I am so sorry that I have not posted an update on our amazing Grace sooner but the last few weeks have been extremely stressful and it's been hard to find even a few minutes to get online. Gracie began to have seizures again, only at night as she is trying to fall asleep. This has been so hard to deal with because her poor little body needs rest right now more then anything and the seizures were making it impossible for her to sleep. She would only be a sleep for a few minutes and a seizure would wake her up. She was going days on no sleep and of course the increase in seizure activity had us all very concerned. They tried to put her back on the sleep meds she was originally taking but it did not help. They modified her seizure meds, but it seemed like the seizure were just getting worse. We decied that repeating the plasma pheresis was the best decision so Gracie went into to OR last week to have a new line placed and began to have the pheresis last Wednesday. She has had 5 treatments so far, and should have her last one on Saturday. She had been having anywhere from 20 to 40 seizures per night and last night she only had 2. We are feeling very hopeful that we are getting back on track. Tonight she is having a sleep-study done to make sure that sleep apnea isn't contributing to the activity. The good news is she has still been able to stay in the NTU during this time and has been able to continue with her therapy sessions. She is getting stronger by the second. Gracie is talking more everyday, she has been reading, and has even began to walk with little assistance. I am still hopeful that we will be able to take her home by the end of Feb. I can't believe we have been here 5 months. We are both so ready to be home and to work on her rehab and recovery from there. The last few weeks have been so challenging and I really appreciate everyone being so supportive and sending me so many kind words and prayers. We are getting our Gracie back a little more everyday and I feel so blessed to have such an incredibly stong little girl. I will try to post some more updates over the next week. Love you all so much.
I also wanted to give a quick update on our incredible Allie and let everyone know what an amazingly loving and supportive sister she has been to our Grace. She has had to deal with so much over the last 5 months and I am constantly blown away by her maturity and selflessness. I can't thank my sister, Amy, enough for all that she has done for Allie. She has taken in a third child and has given Allie such a loving home to be in during this tough time. We are also so lucky that Allie has the greatest second grade teacher on the planet this year. Ms. Coleman is exactly who Allie needed to have this year, I don't think Allie would have made it through this school year without her.
Over the last few months I have really learned the power of positive thoughts and prayers and I wanted to ask everyone to send those thoughts and prayers to my beautiful Mom. If you didn't know, she has been battling cancer over the last 8 months. She is currently in her 2nd round of chemo and her strength is outstanding. I have no doubt where my amazing Gracie gets it from. She is the greatest Mom/Grandma/Person I have ever known. Our family will get through all of this, and we will be stronger then ever!!
Love you all so much!
Tuesday, January 24, 2012
Mindy wrote today,
"I have tried so hard not to focus on why this would happen to my sweet little girl, but over the last week that is all I can think about."
Please, I am begging everyone to continue to pray for Gracie and her family. I want Mindy to know how strong she is and that she is one of the most incredible mothers in the world. She has not been home since the day Gracie went to the hospital, which will be exactly 5 months tomorrow. Please pray for comfort and strength. Gracie has a long road ahead of her but I know in my heart she will overcome this 100%. She has proven, to everyone that ever doubted her, what an amazing, strong, determined/stubborn and powerful GIRL she is. We love you Hinds family!!!♥♥♥
Tuesday, January 17, 2012
Monday, January 16, 2012
Gracie has really been having a hard time with seizures at night. Last night she had seven seizures. She has still been doing great during the day and continues to rock her therapy sessions. They are going to alter her meds and do a sleep study this week. If we don't see improvement she may need some more plasma pheresis. I will keep everyone posted. Love you all.
Friday, January 13, 2012
|Gracie with a very sweet therapy cat.|
Gracie has had a rough week. They changed her sleep meds and now she is having seizures while she is falling asleep. She is still doing great in therapy and we are hoping by putting her back on her sleep meds the seizures will stop. Please continue to pray for our amazing Grace.
Friday, January 6, 2012
Wednesday, January 4, 2012
Yippee her trach is gone and Gracie is doing great without it. Everything went good in the OR. They removed some scar tissue in her throat and they are hoping this will help with her speaking and eating. We spent 24 hrs in the icu and then they transferred us back to the ntu. It was great to see everyone in the icu but I honestly dont know how I lived in there for 100 days. Gracie seemed so happy today and I know this is just another step closer to bringing her home. Thanks for all the continued prayers and support. Love you all.
|I am so proud of both my girls. They are so strong and inspiring.|
I just wanted to share this amazing video that was put together for Gracie and her family. My brother in law Andrew Giannitrapani created it for Mindy, Dig and Allie to have forever and most importantly, when Gracie awoke, she would be able to see how many people have supported her and how many lives shes has changed. I thought everyone would love to see this. Prepare to cry and be moved. Looking back at this day and seeing it on film, I realized what an incredibly beautiful day it was and how much positive energy filled the air. It was a day that will stick with me forever. Thank you to everyone who had any part in putting this unforgettable day together. We ♥ you Gracie. Forever we are all in debt to you and your family!!! ♥♥♥
(Before playing this video, go to the bottom of this page and pause or mute the playlist music.)
(Before playing this video, go to the bottom of this page and pause or mute the playlist music.)