Gracie has really been having a hard time with seizures at night. Last night she had seven seizures. She has still been doing great during the day and continues to rock her therapy sessions. They are going to alter her meds and do a sleep study this week. If we don't see improvement she may need some more plasma pheresis. I will keep everyone posted. Love you all.
Mindy
You have such a sweet beautiful family. Grace sure is a tough girl! Though my situation isn't identical, but I sure can relate. My daughter Norah is in Grace's old room in the PICU, and it seems that we'll be there for a very long time. Though I hope you don't have to go back to the PICU, feel free to stop by in the afternoon if you're ever there.
ReplyDeleteBig hugs to you. I hope the seizures at least slow down a bit.